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Ethical Research in Refugee Communities and the Use of Community Participatory Methods

Children's Hospital Boston and Harvard Medical School, heidi.ellis{at}childrens.harvard.edu

Maryam Kia-Keating

University of California, Santa Barbara, kia{at}post.harvard.edu

Siraad Aden Yusuf

Whittier Street Health Center, siraad.yusuf{at}whsc.org

Alisa Lincoln

Northeastern University, alincoln{at}bu.edu

Abdirahman Nur

Somali Development Center, sdc{at}boston.org

This article describes the distinct challenges associated with conducting ethical research with refugees. A case example of an ongoing study of stigma and access to mental health treatment among Somali refugee adolescents resettled in the USA is presented. In developing the study, standard research paradigms were critically examined in order to take account of the unique aspects of Somali culture and experience. Community participatory methods were adopted to uphold both ethical and methodological rigor in the research. A participatory approach for developing ethical protocols within different refugee communities is recommended.

Key Words: community participatory research • ethics • mental health • refugee • Somalia

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